For Ava An incurable illness, A reluctant activist, An ongoing campaign

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  • 9781781176832
  • 09 augustus 2019
  • 288 pagina's
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Samenvatting

What would you do to save your child? When Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland. Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. For Ava tells the story of the campaign for Ava's medication and the family's move to the Netherlands in order to legally access the medication that would save her life. It also pays tribute to the people who helped Vera achieve her goal. Above all, this is a moving story about the lengths a parent will go to for their child's health and happiness.

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Oorspronkelijke releasedatum
09 augustus 2019
Aantal pagina's
288

Betrokkenen

Hoofdauteur
Vera Twomey
Hoofduitgeverij
The Mercier Press Ltd

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Product breedte
135 mm
Product lengte
215 mm
Verpakking breedte
135 mm
Verpakking hoogte
22 mm
Verpakking lengte
215 mm
Verpakkingsgewicht
330 g

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EAN
9781781176832
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